Wednesday, July 15, 2020

Be Kind or Be Quiet...

In the last 30 days there have been to what seems like just as many appointments. I am tired. It is currently 8:30 in the morning. I left the house at 7 and I will be back to the house by 10. I forgot to take my meds before I left the house this morning. I hate early morning appointments; but if they are scheduled later, the entire day goes to waste. Today's appointment just requires that I am chauffeur. Not taking meds before I left the house, is likely to bite me in the @$$ later. Aetna knows better than my doctor, so what should be my meds is not. Ehlers-danlos Syndrome/Hyper-mobility Syndrome Not Otherwise Specified (as Dr. Gamble puts it, "If I say it is Ehlers-danlos syndrome nobody knows what it is, Hyper-mobility is self explanatory, it makes no difference what I call it as long as I treat it the same")... call it what you want,has left me depleted. I'm tired and everything ALWAYS hurts. My joints, all of them are causing cascading failures. I saw this post to the left last night on Facebook, and in made me mad. I bit my tongue and practiced the art of keep scrolling... Instead I am just addressing it in a blog post today. Oh the irony.

Yes, yes actually my genetics really do suck. Yes, there are literally things missing from my life because of my genetics. I know the person who posted it meant well. I know they were trying to be encouraging and motivating. I just have a hard time finding blanket judgmental statements as motivating. No, Monday doesn't suck, it was a beautiful quiet day. The weather was gorgeous. My husband was and still is amazing! On Monday though the nerve pain in my left leg, because of my genetic condition, was so much I cried myself to a very restless sleep. On Monday even though the weather was BEAUTIFUL I didn't walk down to the garden to pick vegetables, because my hip was dislocated, again. This photo to the left is where I sat and waited today because yes, my genetics suck. Only I sat here and waited not for me but for my son. Because, well you know, genetics. (Don't worry, he is fine, just going to what will be one of a million appointments because of his genetics.) At 12 years old my daughter could tell you she will adopt children, because she won't want to pass her genetics down to her kids. At 12 years old she knew pain that most adults never will.  At 10 years old sitting with the Geneticist we were told, "At 12 we just automatically refer the girls with this condition to the pain management specialist."


My point in all of this guys BE KIND OR BE QUIET. It really is that simple. You don't know what everyone is dealing with. Remember, social media is the highlight reel. It is the echo chamber of opinions and facts that seemingly are interchangeable. Before you post something on social media pause and think, is this going to help someone or hurt someone. In a virtual world where the only way we "get social interaction" is to scroll through Facebook, Instagram, or Twitter, BE KIND.



Monday, July 13, 2020

Unpacked

I have just spent a few minutes going back and reading through previous blog posts. A lot has changed since I started this blog over a decade ago.This one thing rings true through the years, I have not been near as consistent with this as I want to be. So this, this is the disclaimer. Blogging is going to be a scheduled task. Y'all might want to pray about it. This content might get a bit dry or redundant otherwise.

The thing is realistically I know what is going on in this moment. I need to CREATE. The problem, I have half a dozen started projects. Yesterday I thought I would create a poll. What should I be doing now? The truth, FINISHING at least one project I have started. Yesterday that meant I got off of facebook, I didn't post a poll. I went and unpacked 3 boxes. I unpacked 3 boxes that have been in storage. Items I haven't used in 2 years and as of right now have no idea where to put. 

Photo by cottonbro from Pexels
Photo by cottonbro from Pexels
Forever back in the day I have a blog post of before during and after photos of the shelf catastrophe I was attempting to tame. This is the story of almost every room in the house in the moment. Well not to that degree. It just turns out I suck at moving. In 2018 while preparing to move to Virginia I unpacked boxes that had been in the attic since I moved in 2007. Those boxes had been packed from the move from Colorado to Texas. Surely if I had not even seen the inside of those boxes in over 10 years I didn't need to open them now, they could have gone in the trash right? Instead I sorted through them and retrieved my long lost treasures. Now that those treasures have been packed for another 2 years I wonder if they were really treasures...

June was another month of moving, although my address didn't change. My in-laws new house in town was finished, so before the kids all went to visit their other parents we moved Pop and Grandma into their new house. Essentially this means we were moving 2 houses at once. The kids were, FOR THE MOST PART, better at moving into their new rooms and getting things out of storage. But here I sit in my office/den/ bedroom (clearly I have no clue what to call this space) and other than the computer and printer, everything is still in boxes. The closet was easy, so the clothes are put away. I guess at least there is that. The kitchen is a bit better. A bit better in that my husband can cook in it. (That is a strange thought, I used to do all the cooking, now maybe a meal or 2 every 6 months.) This "move" meant that the kitchen and dinning room now share the same space and what was the dining room is now living room. We haven't really even started in there other than to get furniture out of storage. But it is all just pushed clear of a walk way. I feel like everything is still waiting to be unpacked. 

EVERYTHING IS STILL WAITING TO BE UNPACKED... someone help me here. Where is creativity in unpacking? Why, why unpack it why not get rid of it all? It has sat in storage for so long clearly we don't need it. Ahhh the object lesson here... 

Personal growth, "moving" forward is just what all of this is. What are we carrying around in boxes for years that we need to unpack? What is in storage that needs be brought up and dealt with? Are there treasures we need to unbury, is their junk that we just need to toss out? If I wander into any room in the house right now I am over whelmed at what needs to be done. If I just open up this one box though. And that is it! Personal growth is crating. Probably not in the traditional sense and probably not in the most fun of ways. Just maybe it is the most productive way...

Sunday, July 12, 2020

Daytime Pajamas...

I think I should just come back to this particular blog post and start a new post every time I feel like posting, but have no idea of the following:

  1. where the post is going
  2. if I will find the time to finish it
  3. a slew of other excuses that keep me from blogging on the regular. 
Maybe there is a patter to all the false starts. Maybe all of those false starts in one post would just be funny to go back and read. This is what was saved in the draft I just sat down to-

Why yes, yes I did just change from my night time pjs to my daytime pjs. If I am being honest the line between the two has blended. Anyone who has known me since high school would tell you that I really have been training for this moment in history since then, when I frequently arrived at school in flannel pajama pants.

As I sit to type again I battle between the thoughts. there is so much that I could say (er.. um... type) at the moment. Torn between:
  1.  being vulnerable and saying to much
  2. being angry and not caring what people think
  3. bailing on all of that "real" life yuck, being light hearted and silly
  4.  saying screw it all because I'm dyslexic and spell check says hearted is spelled wrong and I don't know how to fix it. (Here we won't talk about the list of other words that I have changed because I couldn't figure out how to spell them.)
See this is the struggle, all of that should be balanced right? 





































































































































































I Owe You No Explanation

It is strange to look back on life. Strange to try to view circumstances and situations from someone else's perspective. How warped a picture can be when they tell you what their perspective is. Note if you can read this blog post, that statement isn't about you, because yes I will shamelessly block that kind of crazy from life in a heart beat. 

One of the things that I learned long ago and I am somewhat certain  I have blogged about before is that I don't have to justify myself to anyone. I owe no one an explanation. (Check out Romans 4 & 5) Now here is the other line of thought there, there are some people that while I owe them nothing doesn't meant that I shouldn't give them something... for example:
  1. my spouse
  2. my children
  3. law enforcement (but even they say you have the right to remain silent).
Here I go back to setting boundaries is good, see how short I just made that list. Granted if my boss asks me why I said or did something and I'm like "I don' t have to explain myself to you!" I'm probably gonna get fired. 

So all of that to perfect this:

I co-parent 6 children with 4 other parents. For my children, 2 kids have 4 parents, and 4 kids have 3 parents. Their are 5 of us co-parenting 6 kids. That isn't an easy task. It means that 4 of us are actively trying to work with out exes to do what is best for our children. I am certain for all of us this can be a challenge and we have our own negativity to struggle with, we don't need yours. Instead that means we choose to let go of our own hurt, face our fears, and choose love. 

Over the last year I have sat with some accusations from people who I thought should have known better, should have known me better. Lies create pain and heartache... and I am not going to apologize for things I didn't do and I am not going to try to justify my choices to them or to you. 

Without going into the accusations, (because remember I block that kinda crazy) my choice, (that you can all weigh in on if you want, but know your opinion doesn't mater) was to let 4 of my children have the relationship they choose with their father.  To be clear here the custody that I share with my ex-husband was never a negotiation. He has always said that the children were better off with me, and I have always said I would do all that was within my power to help him maintain a healthy relationship with our children. I can remember a time when our oldest daughter, who at the time was 6 asked her father who she should live with if we got a divorce. Her father said, "Your mom of course, she will keep you alive. I would forget to feed you." In that moment he was removing the heartache of choosing sides. Fast forward another 4 years and we were divorced.  There is a past there, poor choices, trauma, mental illness... the list goes on. That means letting go of our own hurt, facing fear, and choosing love. This summer that meant 2 of the kiddos stayed home with me and my husband and 2 of them went to go visit their father. I am incredible proud of him for showing grace and understanding and letting them choose that for themselves. He didn't have to. 

The journey of co-parenting is a challenging one. For most of us, we don't want to share our children with our ex-spouses. I didn't pour my entire being into another little person so that I could share them. I am not the only parent who has something to give though. I am not the only parent that my children crave connection with. In what can be a painful tug of war, what damage is done when we restrict or hinder relationship. My goal as a mom, to all of my children, not just the 4 I gave birth to, is to raise well rounded, loving, whole people. So once again, I choose letting go of my hurt, facing my fear, and choosing love.

There are a lot of why did you, how could you, scenarios. I could never, I would never... The truth is we all face those choices every day.  Do you chose to answer out of fear or love?